Seriously!!!

Is this the cutest (and cleanest) rockstar ever??



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Family outing:)

Today we had our first official "Family of 4" outing. Me, Jackie and the 2 angels went on a fun adventure that included, Firehouse Subs, 2 Doctor appointments, BabiesRUs, Target, 2 baths and a stop by grandmas!

Life is crazy... But very good!

The Fullers


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Hip Hip Hooray!!!

Thank you all for your thoughts, DM's, tweets, emails, texts & most importantly your prayers. Our little princess, Ella Grace Fuller is on her way home!

Having friends like you all has made this journey a smooth and bearable one!

We love you all

The Fullers
Brian, Jackie, Noah & Ella


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Guess Who's Coming Home

We are just minutes away from JDCH discharge for Ella Grace. More to come:)


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Goin to get Ella!

If all goes well we will bringing
home our princess in a few hours! We are ready for the 50 degree weather:)







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Ella Grace Homecoming

Well, after many long hours of waiting and your many heartfelt prayers, it looks like Ella Grace Fuller will be coming home on Wednesday! Praise the Lord.

Today they did one final succesful Spinal Tap, an echocardiograph and removed ALL of her probes and IV!

Here is her first post JDCH picture with no wires!!! Yay!!!

Thanks again for all you prayers & support. We will update blog tomorrow too!




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Brusha:)

Ella Grace is doing well. Her seizure activity is seemingly controlled with the addition of Keppra to the Phenobarb.
In the meantime, our little Noah is learning how to brush his teeth so he can train his little sister.




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Ella Grace Zzzzzz

Well the latest news in no news. Dr's are still uncertain what is causing the seizures. In addition to the Phenobarbitol they ate adding Keppra to try to continue to find the perfect dose to regulate the seizure activity. More to come... As of 9:48pm, she is sleeping well and looking great!

Thanks for your continued prayers




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Irish Twins!

Noah & Ella are 10 months apart in age. They call it "Irish Twins".
I think they are a little more than Irish... what do you think?

New Year Joy

My first picture of the new year says it all!





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